Date of birth
: March 7th, 2012
: MPS 1 - Hurler Syndrome
: Barney, Blues Clues, Bubbles, Music
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Cooper was diagnosed with Hurlers nearly 2 weeks after his second birthday. We started seeing many doctors and undergoing many test. He started weekly enzyme treatments that last up to four hours. He was approved for a Bone Marrow Transplant where he would undergo 8 days of chemo and then the transplant. The transplant took place 3 weeks ago and we aren't able to return home from Minnesota until he is 100 days post transplant. Home is 14hrs away. He has a half brother back home but he started school and lives with his mom so he is unable to visit. He is restricted to his room at the Ronald House since he has no immune system. He states out the window watching the other children play. Although it is heart breaking we are hoping for a full recovery and the best life this transplant can give him.