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Katherine

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Aidan

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Jack

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James

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Megan

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Sanibel

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Jack

Jack


Geburtsdatum: January 31, 2006
Hauptdiagnose: Unknown neurological condition
Spezielle Interessen: Mr tumble, bubbles, aquariums,
Mami: Victoria
Papi: Jonathan
Geschwister:

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Geschichte

Jack
Jack was born with an unknown neurological condition and we still don't have a diagnosis for him. He has multiple severe complex medical needs a life limiting illness. He has had 3 cardiac arrests before and been in and out of hospital his whole life. Jack is now 10 years old and requires around the clock high level of care to keep him well. He has a specialist tracheostomy (only child to have this) as he has no swallow and he gets re-current chest infections and pneumonia. He has scoliosis (curved spine) and does experience pain with this on occasions. He uses makaton sign language and despite what he goes through he is a very happy little boy. He understands a lot and love receiving mail. He also has numerous other conditions which is too long to list on here.