Learn more about the different illnesses:

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Clear Cell Sarcoma of the Kidney

Wilms tumor

 

Leukemia:

ALL (Acute Lymphoblastic Leukemia) 

AML (Acute Myelogeneous Leukemia)

 

Cancers of the Central Nervous System:

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Neuroblastoma

 

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Soft Tissue Sarcoma:

Rhabdomyosarcoma

 

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Non-Hodgkin Lymphoma

 

Liver Cancer:

Hepatoblastoma

 

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Germ Cell tumors

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Sickle Cell Anemia

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Matilyn

Matilyn


Date of birth: January 22,2013
Main diagnosis: Hurlers Syndrome
Special interests: Mickey Mouse Club House, Sophie the first, she loves baby dolls especially the ones that sing and make noise
Mom: Tiffany Lala
Dad: Jeffrey Lala
Siblings: none

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Story

Matilyn
Matilyn "Mattie" Jean Lala is a 1-year-old little girl who was recently diagnosed with Hurler Syndrome - a rare genetic disorder in which the body lacks an enzyme needed to break down mucopolysaccharides (long chains of sugar). If not treat it can cause severe mental retardation , organ failure and death by the age of 10 if not sooner. A Cord Blood or bone marrow transplant is the only proven therapy that can stabilize neurocognitive development and improve survival with Hurler syndrome. Matilyn is now in Minnesota and will start her chemotherapy on July 27th and have her chord blood transplant Aug 4th. Matilyn will be staying in minnesota for 5 months undergoing treatment.